Process / pipelineepilepsy-specific pediatric quality of life
Quality of Life in Childhood Epilepsy (QOLCE)
The QOLCE is a comprehensive 76-item disease-specific instrument developed by Sabaz et al. in 2000 to assess quality of life in children with epilepsy aged 4–16 years. Measuring across 16 distinct domains including seizure worry, cognitive concerns, medication effects, school/peer functioning, and family impact, the QOLCE provides a nuanced profile of how epilepsy and its treatment affect daily life. It exists in parent-report (QOLCE-P) and child self-report (QOLCE-C) versions.
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Sources
- Sabaz, M., Cairns, D. R., Lah, S., Williams, B., Gurrin, L., Connelly, A., & Berkovic, S. F. (2000). Validation of the Quality of Life in Childhood Epilepsy Questionnaire in Australian children with newly diagnosed and chronic epilepsy. Neurology, 55(9), 1646-1652. DOI: 10.1212/01.WNL.0000035755.47926.F8 ↗
- Sabaz, M., Donnan, G., Anderson, V., & Berkovic, S. F. (2001). The health-related quality of life of children with newly diagnosed seizures. Epilepsia, 42(12), 1561-1567. DOI: 10.1046/j.1528-1157.2001.04901.x ↗