Process / pipelinecardiac-specific pediatric quality of life
PedsQL Cardiac Module
The PedsQL Cardiac Module is a disease-specific instrument developed by Varni et al. in the mid-2000s to measure quality of life in children and adolescents with cardiac disease aged 2–18 years. Measuring across domains including cardiac symptom impact, activity limitations, and cardiac-related worry, it captures how congenital heart disease, acquired heart disease, and cardiac treatment affect daily functioning and well-being. Used alongside the PedsQL Generic Core Scales, it provides comprehensive assessment of cardiac-specific and general health-related quality of life.
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Sources
- Varni, J. W., Limbers, C. A., & Burwinkle, T. M. (2007). The PedsQL as a pediatric patient-reported outcome: Reliability and validity of the PedsQL Generic Core Scales and PedsQL 4.0 Multidimensional Fatigue Scale in a National US Sample of Children Reported Health. Journal of Clinical Psychology in Medical Settings, 14(3), 206-214. DOI: 10.1007/s10880-007-9082-7 ↗
- Uzark, K., Jones, K., Slusher, J., Limbers, C. A., Burwinkle, T. M., & Varni, J. W. (2012). Quality of life in children and adolescents with heart disease. Congenital Heart Disease, 7(1), 17-25. DOI: 10.1111/j.1747-0803.2011.00589.x ↗