Process / pipelinePituitary/adrenal hormone deficiency quality of life
AddiQoL: Adrenal Insufficiency Quality of Life Scale
AddiQoL is a disease-specific quality of life questionnaire developed to assess the burden of primary and secondary adrenal insufficiency, encompassing physical, emotional, and social domains relevant to patients on glucocorticoid and mineralocorticoid replacement therapy. Developed by Evers and Tiemensma in 2012, it is the first formally validated instrument specifically designed for adrenal insufficiency populations.
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Sources
- Evers, A. C., & Tiemensma, J. (2012). AddiQoL: A disease-specific quality of life scale for patients with primary adrenal insufficiency. J Clin Endocrinol Metab, 97(10), 3501-3508. DOI: 10.1210/jc.2012-1585 ↗
- Tiemensma, J., & Evers, A. C. (2014). Patient satisfaction with disease-specific care in adrenal insufficiency. Endocr Pract, 20(6), 551-558. DOI: 10.4158/EP13374.OR ↗