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어린이 뇌전증의 삶의 질 (Quality of Life in Childhood Epilepsy, QOLCE)×아동 건강 설문지 (CHQ)×소아 천식 삶의 질 설문지 (PAQLQ)×PedsQL 암 모듈×
분야소아과학소아과학소아과학소아과학
계열Process / pipelineProcess / pipelineProcess / pipelineProcess / pipeline
기원 연도2000199619962002
창시자Mark SabazJohn M. LandgrafE. F. JuniperJames W. Varni
유형Parent report; child self-report version availableParent report (primary) and child self-report versions availableChild self-report; parent version availableChild self-report and parent proxy
원전Sabaz, M., Cairns, D. R., Lah, S., Williams, B., Gurrin, L., Connelly, A., & Berkovic, S. F. (2000). Validation of the Quality of Life in Childhood Epilepsy Questionnaire in Australian children with newly diagnosed and chronic epilepsy. Neurology, 55(9), 1646-1652. DOI ↗Landgraf, J. M., Abetz, L., & Ware, J. E. (1996). The CHQ User's Manual. HealthAct. ISBN: 978-0965475303Juniper, E. F., Guyatt, G. H., Feeny, D. H., Ferrie, P. J., Griffith, L. E., & Townsend, M. (1996). Measuring quality of life in children with asthma. Quality of Life Research, 5(1), 35-46. DOI ↗Varni, J. W., Burwinkle, T. M., Katz, E. R., Meeske, K., & Dickinson, R. P. (2002). The PedsQL in pediatric cancer: Reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales, multidimensional fatigue scale, and cancer module. Cancer, 94(7), 2090-2106. DOI ↗
별칭QOL in Childhood Epilepsy QuestionnaireCHQ-50, CHQ-28, CHQ-PF28, CHQ-CF87PAQLQ-SPedsQL 3.0 Cancer
관련4445
요약The QOLCE is a comprehensive 76-item disease-specific instrument developed by Sabaz et al. in 2000 to assess quality of life in children with epilepsy aged 4–16 years. Measuring across 16 distinct domains including seizure worry, cognitive concerns, medication effects, school/peer functioning, and family impact, the QOLCE provides a nuanced profile of how epilepsy and its treatment affect daily life. It exists in parent-report (QOLCE-P) and child self-report (QOLCE-C) versions.The Child Health Questionnaire is a generic, parent-reported instrument developed by Landgraf et al. in 1996 to measure health-related quality of life in children aged 5–18 years. Unlike disease-specific measures, the CHQ captures broad domains of physical, emotional, social, and school functioning, making it suitable for diverse pediatric populations with or without chronic conditions. The CHQ-50 is the most widely used parent-report form; shorter (CHQ-28) and comprehensive (CHQ-CF87 child + family) versions are also available.The PAQLQ is a 23-item self-report instrument developed by Juniper et al. in 1996 to measure quality of life in children aged 7–17 years with asthma. It assesses how asthma and its treatment affect daily functioning, emotions, and activity levels. The instrument has become the gold standard for evaluating asthma-specific health-related quality of life in pediatric populations.The PedsQL Cancer Module is a 31-item disease-specific instrument developed by Varni et al. in 2002 to measure quality of life in children and adolescents with cancer aged 2–18 years. It captures treatment burden (nausea, vomiting, pain, hair loss), cancer-related worry, cognitive concerns, and emotional and social impacts of diagnosis and treatment. Used alongside the PedsQL Generic Core Scales, it provides comprehensive assessment of both cancer-specific and general health-related quality of life during active treatment, survivorship, and end-of-life care.
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ScholarGate방법 비교: QOLCE · CHQ · PAQLQ · PedsQL Cancer Module. 2026-06-20에 다음에서 검색함: https://scholargate.app/ko/compare