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어린이 뇌전증의 삶의 질 (Quality of Life in Childhood Epilepsy, QOLCE)×아동 건강 설문지 (CHQ)×
분야소아과학소아과학
계열Process / pipelineProcess / pipeline
기원 연도20001996
창시자Mark SabazJohn M. Landgraf
유형Parent report; child self-report version availableParent report (primary) and child self-report versions available
원전Sabaz, M., Cairns, D. R., Lah, S., Williams, B., Gurrin, L., Connelly, A., & Berkovic, S. F. (2000). Validation of the Quality of Life in Childhood Epilepsy Questionnaire in Australian children with newly diagnosed and chronic epilepsy. Neurology, 55(9), 1646-1652. DOI ↗Landgraf, J. M., Abetz, L., & Ware, J. E. (1996). The CHQ User's Manual. HealthAct. ISBN: 978-0965475303
별칭QOL in Childhood Epilepsy QuestionnaireCHQ-50, CHQ-28, CHQ-PF28, CHQ-CF87
관련44
요약The QOLCE is a comprehensive 76-item disease-specific instrument developed by Sabaz et al. in 2000 to assess quality of life in children with epilepsy aged 4–16 years. Measuring across 16 distinct domains including seizure worry, cognitive concerns, medication effects, school/peer functioning, and family impact, the QOLCE provides a nuanced profile of how epilepsy and its treatment affect daily life. It exists in parent-report (QOLCE-P) and child self-report (QOLCE-C) versions.The Child Health Questionnaire is a generic, parent-reported instrument developed by Landgraf et al. in 1996 to measure health-related quality of life in children aged 5–18 years. Unlike disease-specific measures, the CHQ captures broad domains of physical, emotional, social, and school functioning, making it suitable for diverse pediatric populations with or without chronic conditions. The CHQ-50 is the most widely used parent-report form; shorter (CHQ-28) and comprehensive (CHQ-CF87 child + family) versions are also available.
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