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아동 건강 설문지 (CHQ)×PedsQL 암 모듈×어린이 뇌전증의 삶의 질 (Quality of Life in Childhood Epilepsy, QOLCE)×
분야소아과학소아과학소아과학
계열Process / pipelineProcess / pipelineProcess / pipeline
기원 연도199620022000
창시자John M. LandgrafJames W. VarniMark Sabaz
유형Parent report (primary) and child self-report versions availableChild self-report and parent proxyParent report; child self-report version available
원전Landgraf, J. M., Abetz, L., & Ware, J. E. (1996). The CHQ User's Manual. HealthAct. ISBN: 978-0965475303Varni, J. W., Burwinkle, T. M., Katz, E. R., Meeske, K., & Dickinson, R. P. (2002). The PedsQL in pediatric cancer: Reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales, multidimensional fatigue scale, and cancer module. Cancer, 94(7), 2090-2106. DOI ↗Sabaz, M., Cairns, D. R., Lah, S., Williams, B., Gurrin, L., Connelly, A., & Berkovic, S. F. (2000). Validation of the Quality of Life in Childhood Epilepsy Questionnaire in Australian children with newly diagnosed and chronic epilepsy. Neurology, 55(9), 1646-1652. DOI ↗
별칭CHQ-50, CHQ-28, CHQ-PF28, CHQ-CF87PedsQL 3.0 CancerQOL in Childhood Epilepsy Questionnaire
관련454
요약The Child Health Questionnaire is a generic, parent-reported instrument developed by Landgraf et al. in 1996 to measure health-related quality of life in children aged 5–18 years. Unlike disease-specific measures, the CHQ captures broad domains of physical, emotional, social, and school functioning, making it suitable for diverse pediatric populations with or without chronic conditions. The CHQ-50 is the most widely used parent-report form; shorter (CHQ-28) and comprehensive (CHQ-CF87 child + family) versions are also available.The PedsQL Cancer Module is a 31-item disease-specific instrument developed by Varni et al. in 2002 to measure quality of life in children and adolescents with cancer aged 2–18 years. It captures treatment burden (nausea, vomiting, pain, hair loss), cancer-related worry, cognitive concerns, and emotional and social impacts of diagnosis and treatment. Used alongside the PedsQL Generic Core Scales, it provides comprehensive assessment of both cancer-specific and general health-related quality of life during active treatment, survivorship, and end-of-life care.The QOLCE is a comprehensive 76-item disease-specific instrument developed by Sabaz et al. in 2000 to assess quality of life in children with epilepsy aged 4–16 years. Measuring across 16 distinct domains including seizure worry, cognitive concerns, medication effects, school/peer functioning, and family impact, the QOLCE provides a nuanced profile of how epilepsy and its treatment affect daily life. It exists in parent-report (QOLCE-P) and child self-report (QOLCE-C) versions.
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