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| 甲状腺眼病生活质量问卷 / Graves眼病生活质量问卷× | AddiQoL：肾上腺功能不全生活质量量表× | |
|---|---|---|
| 领域 | 内分泌学 | 内分泌学 |
| 方法族 | Process / pipeline | Process / pipeline |
| 起源年份≠ | 2001 | 2012 |
| 提出者≠ | Caroline Terwee, Markus Gerding, Frank Dekker | Adriana Evers, Jeanieke Tiemensma |
| 类型 | Patient self-report questionnaire | Patient self-report questionnaire |
| 开创性文献≠ | Terwee, C. B., Gerding, M. N., Dekker, F. W., et al. (2001). Development of a disease-specific questionnaire for patients with Graves' ophthalmopathy: The GO-QoL. Br J Ophthalmol, 82(7), 773-779. link ↗ | Evers, A. C., & Tiemensma, J. (2012). AddiQoL: A disease-specific quality of life scale for patients with primary adrenal insufficiency. J Clin Endocrinol Metab, 97(10), 3501-3508. link ↗ |
| 别名 | GO-QoL, Graves Ophthalmopathy Quality of Life | Addison Quality of Life, AI-QoL |
| 相关 | 3 | 3 |
| 摘要≠ | The TED-QoL (also known as GO-QoL, Graves' Ophthalmopathy Quality of Life questionnaire) is a 16-item disease-specific instrument assessing quality of life impacts in patients with thyroid eye disease (TED), the ophthalmologic manifestation of Graves' disease. Developed by Terwee, Gerding, and colleagues in 2001, it captures both functional vision limitations and psychological distress related to the characteristic eye changes (exophthalmos, lid retraction, diplopia, appearance concerns). It is the gold-standard outcome measure for TED quality of life assessment. | AddiQoL is a disease-specific quality of life questionnaire developed to assess the burden of primary and secondary adrenal insufficiency, encompassing physical, emotional, and social domains relevant to patients on glucocorticoid and mineralocorticoid replacement therapy. Developed by Evers and Tiemensma in 2012, it is the first formally validated instrument specifically designed for adrenal insufficiency populations. |
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