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| 儿童癫痫生活质量量表 (QOLCE)× | 儿童哮喘生活质量问卷 (PAQLQ)× | |
|---|---|---|
| 领域 | 儿科学 | 儿科学 |
| 方法族 | Process / pipeline | Process / pipeline |
| 起源年份≠ | 2000 | 1996 |
| 提出者≠ | Mark Sabaz | E. F. Juniper |
| 类型≠ | Parent report; child self-report version available | Child self-report; parent version available |
| 开创性文献≠ | Sabaz, M., Cairns, D. R., Lah, S., Williams, B., Gurrin, L., Connelly, A., & Berkovic, S. F. (2000). Validation of the Quality of Life in Childhood Epilepsy Questionnaire in Australian children with newly diagnosed and chronic epilepsy. Neurology, 55(9), 1646-1652. DOI ↗ | Juniper, E. F., Guyatt, G. H., Feeny, D. H., Ferrie, P. J., Griffith, L. E., & Townsend, M. (1996). Measuring quality of life in children with asthma. Quality of Life Research, 5(1), 35-46. DOI ↗ |
| 别名 | QOL in Childhood Epilepsy Questionnaire | PAQLQ-S |
| 相关 | 4 | 4 |
| 摘要≠ | The QOLCE is a comprehensive 76-item disease-specific instrument developed by Sabaz et al. in 2000 to assess quality of life in children with epilepsy aged 4–16 years. Measuring across 16 distinct domains including seizure worry, cognitive concerns, medication effects, school/peer functioning, and family impact, the QOLCE provides a nuanced profile of how epilepsy and its treatment affect daily life. It exists in parent-report (QOLCE-P) and child self-report (QOLCE-C) versions. | The PAQLQ is a 23-item self-report instrument developed by Juniper et al. in 1996 to measure quality of life in children aged 7–17 years with asthma. It assesses how asthma and its treatment affect daily functioning, emotions, and activity levels. The instrument has become the gold standard for evaluating asthma-specific health-related quality of life in pediatric populations. |
| ScholarGate数据集 ↗ |
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