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| PedsQL 镰状细胞病模块× | PedsQL心脏模块× | |
|---|---|---|
| 领域 | 儿科学 | 儿科学 |
| 方法族 | Process / pipeline | Process / pipeline |
| 起源年份≠ | 2012 | 2005 |
| 提出者 | James W. Varni | James W. Varni |
| 类型 | Child self-report and parent proxy | Child self-report and parent proxy |
| 开创性文献≠ | Varni, J. W., Limbers, C. A., Bryant, W. P., & Wilson, D. P. (2012). The PedsQL in pediatric sickle cell disease: Measurement model, factor structure, and reliability and validity of the pediatric quality of life inventory sickle cell disease module. Journal of Health Psychology, 17(7), 1012-1024. link ↗ | Varni, J. W., Limbers, C. A., & Burwinkle, T. M. (2007). The PedsQL as a pediatric patient-reported outcome: Reliability and validity of the PedsQL Generic Core Scales and PedsQL 4.0 Multidimensional Fatigue Scale in a National US Sample of Children Reported Health. Journal of Clinical Psychology in Medical Settings, 14(3), 206-214. link ↗ |
| 别名 | PedsQL 3.0 Sickle Cell | PedsQL 3.0 Cardiac |
| 相关 | 4 | 4 |
| 摘要≠ | The PedsQL Sickle Cell Disease Module is a disease-specific instrument developed by Varni et al. in 2012 to measure quality of life in children and adolescents with sickle cell disease aged 2–18 years. Measuring across domains including pain and symptoms, functional limitations, school impact, and disease-related worry, it captures how sickle cell disease and its complications affect daily life and well-being. Used alongside the PedsQL Generic Core Scales, it provides comprehensive assessment of sickle cell disease-specific and general health-related quality of life. | The PedsQL Cardiac Module is a disease-specific instrument developed by Varni et al. in the mid-2000s to measure quality of life in children and adolescents with cardiac disease aged 2–18 years. Measuring across domains including cardiac symptom impact, activity limitations, and cardiac-related worry, it captures how congenital heart disease, acquired heart disease, and cardiac treatment affect daily functioning and well-being. Used alongside the PedsQL Generic Core Scales, it provides comprehensive assessment of cardiac-specific and general health-related quality of life. |
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