方法对比

	儿童哮喘生活质量问卷 (PAQLQ)	PedsQL糖尿病模块	PedsQL 镰状细胞病模块
领域	儿科学	儿科学	儿科学
方法族	Process / pipeline	Process / pipeline	Process / pipeline
起源年份	1996	2003	2012
提出者	E. F. Juniper	James W. Varni	James W. Varni
类型	Child self-report; parent version available	Child self-report and parent proxy	Child self-report and parent proxy
开创性文献	Juniper, E. F., Guyatt, G. H., Feeny, D. H., Ferrie, P. J., Griffith, L. E., & Townsend, M. (1996). Measuring quality of life in children with asthma. Quality of Life Research, 5(1), 35-46.	Varni, J. W., Burwinkle, T. M., Jacobs, J. R., Gottschalk, M., Kaufman, F., & Jones, K. L. (2003). The PedsQL in type 1 and type 2 diabetes: Reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales and type 1 Diabetes Module. Diabetes Care, 26(3), 631-637.	Varni, J. W., Limbers, C. A., Bryant, W. P., & Wilson, D. P. (2012). The PedsQL in pediatric sickle cell disease: Measurement model, factor structure, and reliability and validity of the pediatric quality of life inventory sickle cell disease module. Journal of Health Psychology, 17(7), 1012-1024.
别名	PAQLQ-S	PedsQL 3.0 Diabetes	PedsQL 3.0 Sickle Cell
相关	4	5	4
摘要	The PAQLQ is a 23-item self-report instrument developed by Juniper et al. in 1996 to measure quality of life in children aged 7–17 years with asthma. It assesses how asthma and its treatment affect daily functioning, emotions, and activity levels. The instrument has become the gold standard for evaluating asthma-specific health-related quality of life in pediatric populations.	The PedsQL Diabetes Module is a 28-item disease-specific instrument developed by Varni et al. in 2003 to measure quality of life in children and adolescents with type 1 and type 2 diabetes. It captures the impact of diabetes management, glucose monitoring, and disease-related worry on daily functioning. The module is paired with the PedsQL Generic Core Scales, enabling both disease-specific and general health-related quality of life assessment.	The PedsQL Sickle Cell Disease Module is a disease-specific instrument developed by Varni et al. in 2012 to measure quality of life in children and adolescents with sickle cell disease aged 2–18 years. Measuring across domains including pain and symptoms, functional limitations, school impact, and disease-related worry, it captures how sickle cell disease and its complications affect daily life and well-being. Used alongside the PedsQL Generic Core Scales, it provides comprehensive assessment of sickle cell disease-specific and general health-related quality of life.