方法对比

	儿童关节炎功能评估报告 (JAFAR)	儿童哮喘生活质量问卷 (PAQLQ)	PedsQL糖尿病模块	儿童癫痫生活质量量表 (QOLCE)
领域	儿科学	儿科学	儿科学	儿科学
方法族	Process / pipeline	Process / pipeline	Process / pipeline	Process / pipeline
起源年份	1989	1996	2003	2000
提出者	David J. Lovell	E. F. Juniper	James W. Varni	Mark Sabaz
类型	Parent report of child functional status	Child self-report; parent version available	Child self-report and parent proxy	Parent report; child self-report version available
开创性文献	Lovell, D. J., Howe, S., Shear, E., Hartner, S., McGirr, G., Schulte, M., & Jaffe, R. (1989). Development of a disability measurement tool for juvenile rheumatoid arthritis. Arthritis & Rheumatism, 32(11), 1390-1395.	Juniper, E. F., Guyatt, G. H., Feeny, D. H., Ferrie, P. J., Griffith, L. E., & Townsend, M. (1996). Measuring quality of life in children with asthma. Quality of Life Research, 5(1), 35-46.	Varni, J. W., Burwinkle, T. M., Jacobs, J. R., Gottschalk, M., Kaufman, F., & Jones, K. L. (2003). The PedsQL in type 1 and type 2 diabetes: Reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales and type 1 Diabetes Module. Diabetes Care, 26(3), 631-637.	Sabaz, M., Cairns, D. R., Lah, S., Williams, B., Gurrin, L., Connelly, A., & Berkovic, S. F. (2000). Validation of the Quality of Life in Childhood Epilepsy Questionnaire in Australian children with newly diagnosed and chronic epilepsy. Neurology, 55(9), 1646-1652.
别名	JAFAR, Juvenile Arthritis Functional Assessment Scale	PAQLQ-S	PedsQL 3.0 Diabetes	QOL in Childhood Epilepsy Questionnaire
相关	4	4	5	4
摘要	The JAFAR is a parent-report instrument developed by Lovell et al. in 1989 to assess functional ability in children and adolescents with juvenile idiopathic arthritis (JIA). Measuring across multiple domains including lower extremity function, upper extremity function, and activities of daily living, the JAFAR quantifies the extent to which arthritis and its treatment affect the child's mobility, self-care, and participation in age-appropriate activities. It remains a standard functional outcome measure in pediatric rheumatology research and clinical practice.	The PAQLQ is a 23-item self-report instrument developed by Juniper et al. in 1996 to measure quality of life in children aged 7–17 years with asthma. It assesses how asthma and its treatment affect daily functioning, emotions, and activity levels. The instrument has become the gold standard for evaluating asthma-specific health-related quality of life in pediatric populations.	The PedsQL Diabetes Module is a 28-item disease-specific instrument developed by Varni et al. in 2003 to measure quality of life in children and adolescents with type 1 and type 2 diabetes. It captures the impact of diabetes management, glucose monitoring, and disease-related worry on daily functioning. The module is paired with the PedsQL Generic Core Scales, enabling both disease-specific and general health-related quality of life assessment.	The QOLCE is a comprehensive 76-item disease-specific instrument developed by Sabaz et al. in 2000 to assess quality of life in children with epilepsy aged 4–16 years. Measuring across 16 distinct domains including seizure worry, cognitive concerns, medication effects, school/peer functioning, and family impact, the QOLCE provides a nuanced profile of how epilepsy and its treatment affect daily life. It exists in parent-report (QOLCE-P) and child self-report (QOLCE-C) versions.