方法对比
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| 亨廷顿病健康相关生命质量量表 (HD-QoL)× | 卒中特异性生命质量量表 (SS-QoL)× | |
|---|---|---|
| 领域 | 神经病学 | 神经病学 |
| 方法族 | Process / pipeline | Process / pipeline |
| 起源年份≠ | 2001 | 1999 |
| 提出者≠ | Helder et al., University of Leiden | Lee S. Williams, Indiana University |
| 类型 | Self-report questionnaire | Self-report questionnaire |
| 开创性文献≠ | Helder, D. I., Kaptein, A. A., van Kempen, G. M., Weinman, J., van Houwelingen, H. C., & Roos, R. A. (2001). Living with Huntington's disease: Illness perceptions, coping mechanisms, and patients' well-being. Journal of Psychosomatic Research, 50(1), 1-7. DOI ↗ | Williams, L. S., Weinberger, M., Harris, L. E., Clark, D. O., & Biller, J. (1999). Development of a Stroke-Specific Quality of Life Scale. Stroke, 30(7), 1362-1369. DOI ↗ |
| 别名 | Huntington Disease QoL, HD-QoL Scale | Stroke-Specific QoL, SS-QOL |
| 相关 | 4 | 4 |
| 摘要≠ | The HD-QoL is a disease-specific quality-of-life instrument designed to measure the multidimensional impact of Huntington's disease on patients' physical, emotional, social, and cognitive functioning. Developed by Helder and colleagues in 2001, it uniquely addresses the progressive motor, cognitive, and psychiatric manifestations characteristic of HD. The scale recognizes that HD burden extends beyond neurological deficits to profound impacts on identity, family relationships, and existential well-being. | The SS-QoL is a disease-specific quality-of-life instrument designed to capture the multidimensional impact of stroke on survivors' functional and emotional well-being. Developed by Williams and colleagues in 1999, this 49-item scale addresses stroke-specific concerns including language, cognition, mobility, and emotional functioning. It is a gold-standard instrument for stroke outcome research and routine clinical monitoring of post-stroke recovery. |
| ScholarGate数据集 ↗ |
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