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| 库欣综合征生活质量问卷 (CushQoL)× | AddiQoL：肾上腺功能不全生活质量量表× | |
|---|---|---|
| 领域 | 内分泌学 | 内分泌学 |
| 方法族 | Process / pipeline | Process / pipeline |
| 起源年份≠ | 2008 | 2012 |
| 提出者≠ | Sergio Webb, María D. Bernal, Juan M. Rivera-Caravaca | Adriana Evers, Jeanieke Tiemensma |
| 类型 | Patient self-report questionnaire | Patient self-report questionnaire |
| 开创性文献≠ | Webb, S. M., Bernal, M. D., Rivera-Caravaca, J. M., & Córdoba-Soriano, J. G. (2008). Development and validation of CushQoL, a disease-specific quality of life questionnaire in Cushing's syndrome. J Clin Endocrinol Metab, 93(5), 1751-1759. link ↗ | Evers, A. C., & Tiemensma, J. (2012). AddiQoL: A disease-specific quality of life scale for patients with primary adrenal insufficiency. J Clin Endocrinol Metab, 97(10), 3501-3508. link ↗ |
| 别名 | Cushing QoL, CS-QoL | Addison Quality of Life, AI-QoL |
| 相关 | 3 | 3 |
| 摘要≠ | CushQoL is a disease-specific 12-item quality of life questionnaire developed to assess the multidimensional impacts of Cushing's syndrome—a severe endocrine disorder characterized by excess cortisol production. Developed by Webb and colleagues in 2008, it captures physical symptoms (fatigue, weight gain, weakness, hirsutism), psychological manifestations (depression, anxiety, cognitive impairment), and social/occupational dysfunction unique to Cushing's syndrome. It is the standard outcome measure for assessing quality of life improvement following curative therapy. | AddiQoL is a disease-specific quality of life questionnaire developed to assess the burden of primary and secondary adrenal insufficiency, encompassing physical, emotional, and social domains relevant to patients on glucocorticoid and mineralocorticoid replacement therapy. Developed by Evers and Tiemensma in 2012, it is the first formally validated instrument specifically designed for adrenal insufficiency populations. |
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