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| 肌萎缩侧索硬化功能评定量表修订版 (ALSFRS-R)× | 卒中特异性生命质量量表 (SS-QoL)× | |
|---|---|---|
| 领域 | 神经病学 | 神经病学 |
| 方法族 | Process / pipeline | Process / pipeline |
| 起源年份 | 1999 | 1999 |
| 提出者≠ | James M. Cedarbaum, NIH/NINDS | Lee S. Williams, Indiana University |
| 类型≠ | Clinician-rated and patient-reported hybrid | Self-report questionnaire |
| 开创性文献≠ | Cedarbaum, J. M., Stambler, N., Malta, E., Fuller, C., Hilt, D., Thurmond, B., & Nakanishi, A. (1999). The ALSFRS-R: A revised ALS functional rating scale that incorporates assessments of respiratory function. Journal of the Neurological Sciences, 169(1-2), 13-21. DOI ↗ | Williams, L. S., Weinberger, M., Harris, L. E., Clark, D. O., & Biller, J. (1999). Development of a Stroke-Specific Quality of Life Scale. Stroke, 30(7), 1362-1369. DOI ↗ |
| 别名 | ALS FRS-R, Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised | Stroke-Specific QoL, SS-QOL |
| 相关 | 4 | 4 |
| 摘要≠ | The ALSFRS-R is a 12-item clinician-administered functional rating scale designed to assess disease progression and functional status in amyotrophic lateral sclerosis (ALS). Introduced by Cedarbaum and colleagues in 1999, it expands upon the original ALSFRS by incorporating respiratory function assessment. It is the primary outcome measure in ALS clinical trials and routine clinical monitoring, providing quantitative tracking of disease decline that predicts survival and guides management decisions. | The SS-QoL is a disease-specific quality-of-life instrument designed to capture the multidimensional impact of stroke on survivors' functional and emotional well-being. Developed by Williams and colleagues in 1999, this 49-item scale addresses stroke-specific concerns including language, cognition, mobility, and emotional functioning. It is a gold-standard instrument for stroke outcome research and routine clinical monitoring of post-stroke recovery. |
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