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| 肢端肥大症生活质量问卷 (AcroQoL)× | ThyPRO：甲状腺相关患者报告结局量表× | |
|---|---|---|
| 领域 | 内分泌学 | 内分泌学 |
| 方法族 | Process / pipeline | Process / pipeline |
| 起源年份≠ | 2006 | 2009 |
| 提出者≠ | Markus Buchfelder, Dieter Weigel, Monica Droste, et al. | Torquil Watt, Jens Bjørner, Marianne Groenvold |
| 类型 | Patient self-report questionnaire | Patient self-report questionnaire |
| 开创性文献≠ | Buchfelder, M., Weigel, D., Droste, M., et al. (2006). The quality of life of acromegaly patients is markedly impaired: Data from the German Acromegaly Registry. Eur J Endocrinol, 150(4), 541-549. link ↗ | Watt, T., Bjorner, J. B., Groenvold, M., et al. (2009). Establishing construct validity for the thyroid-related patient reported outcomes (ThyPRO): An initial examination. J Clin Endocrinol Metab, 94(9), 3572-3580. link ↗ |
| 别名 | Acromegaly QoL, Acro-QoL | ThyPRO-85, ThyPRO-39 |
| 相关 | 3 | 3 |
| 摘要≠ | AcroQoL is a disease-specific 22-item quality of life questionnaire developed to assess the multidimensional burden of acromegaly, a chronic growth hormone-secreting pituitary tumor disorder. Developed by Buchfelder and colleagues in 2006, it captures physical complications (joint/bone pain, carpal tunnel syndrome, metabolic disease), appearance-related concerns (facial changes, hand/foot enlargement), and psychological/social impacts (mood, social limitation, body image). It is the primary outcome measure for assessing quality of life in acromegaly treatment trials and clinical practice. | ThyPRO is a comprehensive patient-reported outcome measure assessing the quality of life impact of thyroid disease and its treatment across 13 dimensions. Developed by Watt and colleagues in 2009, it is the most extensively validated thyroid-specific instrument, covering both physical and psychological domains relevant to patients with hyperthyroidism, hypothyroidism, and thyroid cancer. |
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