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| PedsQL Kardiologický modul× | Quality of Life in Childhood Epilepsy (QOLCE)× | |
|---|---|---|
| Odbor | Pediatria | Pediatria |
| Rodina | Process / pipeline | Process / pipeline |
| Rok vzniku≠ | 2005 | 2000 |
| Tvorca≠ | James W. Varni | Mark Sabaz |
| Typ≠ | Child self-report and parent proxy | Parent report; child self-report version available |
| Pôvodný zdroj≠ | Varni, J. W., Limbers, C. A., & Burwinkle, T. M. (2007). The PedsQL as a pediatric patient-reported outcome: Reliability and validity of the PedsQL Generic Core Scales and PedsQL 4.0 Multidimensional Fatigue Scale in a National US Sample of Children Reported Health. Journal of Clinical Psychology in Medical Settings, 14(3), 206-214. link ↗ | Sabaz, M., Cairns, D. R., Lah, S., Williams, B., Gurrin, L., Connelly, A., & Berkovic, S. F. (2000). Validation of the Quality of Life in Childhood Epilepsy Questionnaire in Australian children with newly diagnosed and chronic epilepsy. Neurology, 55(9), 1646-1652. DOI ↗ |
| Ďalšie názvy | PedsQL 3.0 Cardiac | QOL in Childhood Epilepsy Questionnaire |
| Príbuzné | 4 | 4 |
| Zhrnutie≠ | The PedsQL Cardiac Module is a disease-specific instrument developed by Varni et al. in the mid-2000s to measure quality of life in children and adolescents with cardiac disease aged 2–18 years. Measuring across domains including cardiac symptom impact, activity limitations, and cardiac-related worry, it captures how congenital heart disease, acquired heart disease, and cardiac treatment affect daily functioning and well-being. Used alongside the PedsQL Generic Core Scales, it provides comprehensive assessment of cardiac-specific and general health-related quality of life. | The QOLCE is a comprehensive 76-item disease-specific instrument developed by Sabaz et al. in 2000 to assess quality of life in children with epilepsy aged 4–16 years. Measuring across 16 distinct domains including seizure worry, cognitive concerns, medication effects, school/peer functioning, and family impact, the QOLCE provides a nuanced profile of how epilepsy and its treatment affect daily life. It exists in parent-report (QOLCE-P) and child self-report (QOLCE-C) versions. |
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