Porovnať metódy

	Správa o funkčnom hodnotení juvenilnej artritídy (JAFAR)	Quality of Life in Childhood Epilepsy (QOLCE)
Odbor	Pediatria	Pediatria
Rodina	Process / pipeline	Process / pipeline
Rok vzniku	1989	2000
Tvorca	David J. Lovell	Mark Sabaz
Typ	Parent report of child functional status	Parent report; child self-report version available
Pôvodný zdroj	Lovell, D. J., Howe, S., Shear, E., Hartner, S., McGirr, G., Schulte, M., & Jaffe, R. (1989). Development of a disability measurement tool for juvenile rheumatoid arthritis. Arthritis & Rheumatism, 32(11), 1390-1395.	Sabaz, M., Cairns, D. R., Lah, S., Williams, B., Gurrin, L., Connelly, A., & Berkovic, S. F. (2000). Validation of the Quality of Life in Childhood Epilepsy Questionnaire in Australian children with newly diagnosed and chronic epilepsy. Neurology, 55(9), 1646-1652.
Ďalšie názvy	JAFAR, Juvenile Arthritis Functional Assessment Scale	QOL in Childhood Epilepsy Questionnaire
Príbuzné	4	4
Zhrnutie	The JAFAR is a parent-report instrument developed by Lovell et al. in 1989 to assess functional ability in children and adolescents with juvenile idiopathic arthritis (JIA). Measuring across multiple domains including lower extremity function, upper extremity function, and activities of daily living, the JAFAR quantifies the extent to which arthritis and its treatment affect the child's mobility, self-care, and participation in age-appropriate activities. It remains a standard functional outcome measure in pediatric rheumatology research and clinical practice.	The QOLCE is a comprehensive 76-item disease-specific instrument developed by Sabaz et al. in 2000 to assess quality of life in children with epilepsy aged 4–16 years. Measuring across 16 distinct domains including seizure worry, cognitive concerns, medication effects, school/peer functioning, and family impact, the QOLCE provides a nuanced profile of how epilepsy and its treatment affect daily life. It exists in parent-report (QOLCE-P) and child self-report (QOLCE-C) versions.