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PedsQL Sickle Cell Disease Module×Pediatric Asthma Quality of Life Questionnaire (PAQLQ)×PedsQL Cardiac Module×
VakgebiedKindergeneeskundeKindergeneeskundeKindergeneeskunde
FamilieProcess / pipelineProcess / pipelineProcess / pipeline
Jaar van ontstaan201219962005
GrondleggerJames W. VarniE. F. JuniperJames W. Varni
TypeChild self-report and parent proxyChild self-report; parent version availableChild self-report and parent proxy
Oorspronkelijke bronVarni, J. W., Limbers, C. A., Bryant, W. P., & Wilson, D. P. (2012). The PedsQL in pediatric sickle cell disease: Measurement model, factor structure, and reliability and validity of the pediatric quality of life inventory sickle cell disease module. Journal of Health Psychology, 17(7), 1012-1024. link ↗Juniper, E. F., Guyatt, G. H., Feeny, D. H., Ferrie, P. J., Griffith, L. E., & Townsend, M. (1996). Measuring quality of life in children with asthma. Quality of Life Research, 5(1), 35-46. DOI ↗Varni, J. W., Limbers, C. A., & Burwinkle, T. M. (2007). The PedsQL as a pediatric patient-reported outcome: Reliability and validity of the PedsQL Generic Core Scales and PedsQL 4.0 Multidimensional Fatigue Scale in a National US Sample of Children Reported Health. Journal of Clinical Psychology in Medical Settings, 14(3), 206-214. link ↗
AliassenPedsQL 3.0 Sickle CellPAQLQ-SPedsQL 3.0 Cardiac
Verwant444
SamenvattingThe PedsQL Sickle Cell Disease Module is a disease-specific instrument developed by Varni et al. in 2012 to measure quality of life in children and adolescents with sickle cell disease aged 2–18 years. Measuring across domains including pain and symptoms, functional limitations, school impact, and disease-related worry, it captures how sickle cell disease and its complications affect daily life and well-being. Used alongside the PedsQL Generic Core Scales, it provides comprehensive assessment of sickle cell disease-specific and general health-related quality of life.The PAQLQ is a 23-item self-report instrument developed by Juniper et al. in 1996 to measure quality of life in children aged 7–17 years with asthma. It assesses how asthma and its treatment affect daily functioning, emotions, and activity levels. The instrument has become the gold standard for evaluating asthma-specific health-related quality of life in pediatric populations.The PedsQL Cardiac Module is a disease-specific instrument developed by Varni et al. in the mid-2000s to measure quality of life in children and adolescents with cardiac disease aged 2–18 years. Measuring across domains including cardiac symptom impact, activity limitations, and cardiac-related worry, it captures how congenital heart disease, acquired heart disease, and cardiac treatment affect daily functioning and well-being. Used alongside the PedsQL Generic Core Scales, it provides comprehensive assessment of cardiac-specific and general health-related quality of life.
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ScholarGateMethoden vergelijken: PedsQL Sickle Cell Module · PAQLQ · PedsQL Cardiac Module. Geraadpleegd op 2026-06-20 via https://scholargate.app/nl/compare