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脳卒中特異的生活の質スケール (SS-QoL)×ALS機能評価尺度改訂版 (ALSFRS-R)×
分野神経学神経学
系統Process / pipelineProcess / pipeline
提唱年19991999
提唱者Lee S. Williams, Indiana UniversityJames M. Cedarbaum, NIH/NINDS
種類Self-report questionnaireClinician-rated and patient-reported hybrid
原典Williams, L. S., Weinberger, M., Harris, L. E., Clark, D. O., & Biller, J. (1999). Development of a Stroke-Specific Quality of Life Scale. Stroke, 30(7), 1362-1369. DOI ↗Cedarbaum, J. M., Stambler, N., Malta, E., Fuller, C., Hilt, D., Thurmond, B., & Nakanishi, A. (1999). The ALSFRS-R: A revised ALS functional rating scale that incorporates assessments of respiratory function. Journal of the Neurological Sciences, 169(1-2), 13-21. DOI ↗
別名Stroke-Specific QoL, SS-QOLALS FRS-R, Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised
関連44
概要The SS-QoL is a disease-specific quality-of-life instrument designed to capture the multidimensional impact of stroke on survivors' functional and emotional well-being. Developed by Williams and colleagues in 1999, this 49-item scale addresses stroke-specific concerns including language, cognition, mobility, and emotional functioning. It is a gold-standard instrument for stroke outcome research and routine clinical monitoring of post-stroke recovery.The ALSFRS-R is a 12-item clinician-administered functional rating scale designed to assess disease progression and functional status in amyotrophic lateral sclerosis (ALS). Introduced by Cedarbaum and colleagues in 1999, it expands upon the original ALSFRS by incorporating respiratory function assessment. It is the primary outcome measure in ALS clinical trials and routine clinical monitoring, providing quantitative tracking of disease decline that predicts survival and guides management decisions.
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