Comparer des méthodes

	TED-QoL	AddiQoL : Échelle de qualité de vie pour l'insuffisance surrénale
Domaine	Endocrinologie	Endocrinologie
Famille	Process / pipeline	Process / pipeline
Année d'origine	2001	2012
Auteur d'origine	Caroline Terwee, Markus Gerding, Frank Dekker	Adriana Evers, Jeanieke Tiemensma
Type	Patient self-report questionnaire	Patient self-report questionnaire
Source fondatrice	Terwee, C. B., Gerding, M. N., Dekker, F. W., et al. (2001). Development of a disease-specific questionnaire for patients with Graves' ophthalmopathy: The GO-QoL. Br J Ophthalmol, 82(7), 773-779.	Evers, A. C., & Tiemensma, J. (2012). AddiQoL: A disease-specific quality of life scale for patients with primary adrenal insufficiency. J Clin Endocrinol Metab, 97(10), 3501-3508.
Alias	GO-QoL, Graves Ophthalmopathy Quality of Life	Addison Quality of Life, AI-QoL
Apparentées	3	3
Résumé	The TED-QoL (also known as GO-QoL, Graves' Ophthalmopathy Quality of Life questionnaire) is a 16-item disease-specific instrument assessing quality of life impacts in patients with thyroid eye disease (TED), the ophthalmologic manifestation of Graves' disease. Developed by Terwee, Gerding, and colleagues in 2001, it captures both functional vision limitations and psychological distress related to the characteristic eye changes (exophthalmos, lid retraction, diplopia, appearance concerns). It is the gold-standard outcome measure for TED quality of life assessment.	AddiQoL is a disease-specific quality of life questionnaire developed to assess the burden of primary and secondary adrenal insufficiency, encompassing physical, emotional, and social domains relevant to patients on glucocorticoid and mineralocorticoid replacement therapy. Developed by Evers and Tiemensma in 2012, it is the first formally validated instrument specifically designed for adrenal insufficiency populations.