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| Rapport d'évaluation fonctionnelle de l'arthrite juvénile (JAFAR)× | Qualité de vie dans l'épilepsie infantile (QOLCE)× | |
|---|---|---|
| Domaine | Pédiatrie | Pédiatrie |
| Famille | Process / pipeline | Process / pipeline |
| Année d'origine≠ | 1989 | 2000 |
| Auteur d'origine≠ | David J. Lovell | Mark Sabaz |
| Type≠ | Parent report of child functional status | Parent report; child self-report version available |
| Source fondatrice≠ | Lovell, D. J., Howe, S., Shear, E., Hartner, S., McGirr, G., Schulte, M., & Jaffe, R. (1989). Development of a disability measurement tool for juvenile rheumatoid arthritis. Arthritis & Rheumatism, 32(11), 1390-1395. link ↗ | Sabaz, M., Cairns, D. R., Lah, S., Williams, B., Gurrin, L., Connelly, A., & Berkovic, S. F. (2000). Validation of the Quality of Life in Childhood Epilepsy Questionnaire in Australian children with newly diagnosed and chronic epilepsy. Neurology, 55(9), 1646-1652. DOI ↗ |
| Alias≠ | JAFAR, Juvenile Arthritis Functional Assessment Scale | QOL in Childhood Epilepsy Questionnaire |
| Apparentées | 4 | 4 |
| Résumé≠ | The JAFAR is a parent-report instrument developed by Lovell et al. in 1989 to assess functional ability in children and adolescents with juvenile idiopathic arthritis (JIA). Measuring across multiple domains including lower extremity function, upper extremity function, and activities of daily living, the JAFAR quantifies the extent to which arthritis and its treatment affect the child's mobility, self-care, and participation in age-appropriate activities. It remains a standard functional outcome measure in pediatric rheumatology research and clinical practice. | The QOLCE is a comprehensive 76-item disease-specific instrument developed by Sabaz et al. in 2000 to assess quality of life in children with epilepsy aged 4–16 years. Measuring across 16 distinct domains including seizure worry, cognitive concerns, medication effects, school/peer functioning, and family impact, the QOLCE provides a nuanced profile of how epilepsy and its treatment affect daily life. It exists in parent-report (QOLCE-P) and child self-report (QOLCE-C) versions. |
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