Comparer des méthodes

	HD-QoL	Échelle de qualité de vie spécifique à l'AVC (SS-QoL)
Domaine	Neurologie	Neurologie
Famille	Process / pipeline	Process / pipeline
Année d'origine	2001	1999
Auteur d'origine	Helder et al., University of Leiden	Lee S. Williams, Indiana University
Type	Self-report questionnaire	Self-report questionnaire
Source fondatrice	Helder, D. I., Kaptein, A. A., van Kempen, G. M., Weinman, J., van Houwelingen, H. C., & Roos, R. A. (2001). Living with Huntington's disease: Illness perceptions, coping mechanisms, and patients' well-being. Journal of Psychosomatic Research, 50(1), 1-7.	Williams, L. S., Weinberger, M., Harris, L. E., Clark, D. O., & Biller, J. (1999). Development of a Stroke-Specific Quality of Life Scale. Stroke, 30(7), 1362-1369.
Alias	Huntington Disease QoL, HD-QoL Scale	Stroke-Specific QoL, SS-QOL
Apparentées	4	4
Résumé	The HD-QoL is a disease-specific quality-of-life instrument designed to measure the multidimensional impact of Huntington's disease on patients' physical, emotional, social, and cognitive functioning. Developed by Helder and colleagues in 2001, it uniquely addresses the progressive motor, cognitive, and psychiatric manifestations characteristic of HD. The scale recognizes that HD burden extends beyond neurological deficits to profound impacts on identity, family relationships, and existential well-being.	The SS-QoL is a disease-specific quality-of-life instrument designed to capture the multidimensional impact of stroke on survivors' functional and emotional well-being. Developed by Williams and colleagues in 1999, this 49-item scale addresses stroke-specific concerns including language, cognition, mobility, and emotional functioning. It is a gold-standard instrument for stroke outcome research and routine clinical monitoring of post-stroke recovery.