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Nuoruusiän nivelreuman toimintakykytestiaineisto (JAFAR)×Pediatric Asthma Quality of Life Questionnaire (PAQLQ)×Lasten epilepsian elämänlaatu (QOLCE)×
TieteenalaLastenlääketiedeLastenlääketiedeLastenlääketiede
MenetelmäperheProcess / pipelineProcess / pipelineProcess / pipeline
Syntyvuosi198919962000
KehittäjäDavid J. LovellE. F. JuniperMark Sabaz
TyyppiParent report of child functional statusChild self-report; parent version availableParent report; child self-report version available
AlkuperäislähdeLovell, D. J., Howe, S., Shear, E., Hartner, S., McGirr, G., Schulte, M., & Jaffe, R. (1989). Development of a disability measurement tool for juvenile rheumatoid arthritis. Arthritis & Rheumatism, 32(11), 1390-1395. link ↗Juniper, E. F., Guyatt, G. H., Feeny, D. H., Ferrie, P. J., Griffith, L. E., & Townsend, M. (1996). Measuring quality of life in children with asthma. Quality of Life Research, 5(1), 35-46. DOI ↗Sabaz, M., Cairns, D. R., Lah, S., Williams, B., Gurrin, L., Connelly, A., & Berkovic, S. F. (2000). Validation of the Quality of Life in Childhood Epilepsy Questionnaire in Australian children with newly diagnosed and chronic epilepsy. Neurology, 55(9), 1646-1652. DOI ↗
RinnakkaisnimetJAFAR, Juvenile Arthritis Functional Assessment ScalePAQLQ-SQOL in Childhood Epilepsy Questionnaire
Liittyvät444
TiivistelmäThe JAFAR is a parent-report instrument developed by Lovell et al. in 1989 to assess functional ability in children and adolescents with juvenile idiopathic arthritis (JIA). Measuring across multiple domains including lower extremity function, upper extremity function, and activities of daily living, the JAFAR quantifies the extent to which arthritis and its treatment affect the child's mobility, self-care, and participation in age-appropriate activities. It remains a standard functional outcome measure in pediatric rheumatology research and clinical practice.The PAQLQ is a 23-item self-report instrument developed by Juniper et al. in 1996 to measure quality of life in children aged 7–17 years with asthma. It assesses how asthma and its treatment affect daily functioning, emotions, and activity levels. The instrument has become the gold standard for evaluating asthma-specific health-related quality of life in pediatric populations.The QOLCE is a comprehensive 76-item disease-specific instrument developed by Sabaz et al. in 2000 to assess quality of life in children with epilepsy aged 4–16 years. Measuring across 16 distinct domains including seizure worry, cognitive concerns, medication effects, school/peer functioning, and family impact, the QOLCE provides a nuanced profile of how epilepsy and its treatment affect daily life. It exists in parent-report (QOLCE-P) and child self-report (QOLCE-C) versions.
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ScholarGateVertaile menetelmiä: JAFAR · PAQLQ · QOLCE. Haettu 2026-06-20 osoitteesta https://scholargate.app/fi/compare