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Nuoruusiän nivelreuman toimintakykytestiaineisto (JAFAR)×Lasten epilepsian elämänlaatu (QOLCE)×
TieteenalaLastenlääketiedeLastenlääketiede
MenetelmäperheProcess / pipelineProcess / pipeline
Syntyvuosi19892000
KehittäjäDavid J. LovellMark Sabaz
TyyppiParent report of child functional statusParent report; child self-report version available
AlkuperäislähdeLovell, D. J., Howe, S., Shear, E., Hartner, S., McGirr, G., Schulte, M., & Jaffe, R. (1989). Development of a disability measurement tool for juvenile rheumatoid arthritis. Arthritis & Rheumatism, 32(11), 1390-1395. link ↗Sabaz, M., Cairns, D. R., Lah, S., Williams, B., Gurrin, L., Connelly, A., & Berkovic, S. F. (2000). Validation of the Quality of Life in Childhood Epilepsy Questionnaire in Australian children with newly diagnosed and chronic epilepsy. Neurology, 55(9), 1646-1652. DOI ↗
RinnakkaisnimetJAFAR, Juvenile Arthritis Functional Assessment ScaleQOL in Childhood Epilepsy Questionnaire
Liittyvät44
TiivistelmäThe JAFAR is a parent-report instrument developed by Lovell et al. in 1989 to assess functional ability in children and adolescents with juvenile idiopathic arthritis (JIA). Measuring across multiple domains including lower extremity function, upper extremity function, and activities of daily living, the JAFAR quantifies the extent to which arthritis and its treatment affect the child's mobility, self-care, and participation in age-appropriate activities. It remains a standard functional outcome measure in pediatric rheumatology research and clinical practice.The QOLCE is a comprehensive 76-item disease-specific instrument developed by Sabaz et al. in 2000 to assess quality of life in children with epilepsy aged 4–16 years. Measuring across 16 distinct domains including seizure worry, cognitive concerns, medication effects, school/peer functioning, and family impact, the QOLCE provides a nuanced profile of how epilepsy and its treatment affect daily life. It exists in parent-report (QOLCE-P) and child self-report (QOLCE-C) versions.
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ScholarGateVertaile menetelmiä: JAFAR · QOLCE. Haettu 2026-06-20 osoitteesta https://scholargate.app/fi/compare