Registry-Based Research
Registry-based research uses systematically collected clinical data from patient registries—organized databases of patients with a specific disease or condition—to conduct observational studies. Registries began in the mid-20th century but have proliferated since the 2000s as electronic health records expanded and funding agencies recognized their value for real-world evidence generation. Registry studies provide large, diverse, representative populations without the cost of recruiting and following prospectively, enabling rapid generation of clinical evidence.
Quellendatensatz
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- Gini, R., Francesconi, P., Mazzaglia, G., Brignoli, G., Cricelli, C., Lapi, F., & Cricelli, A. (2020). Chronic disease prevalence from Italian administrative databases: the PREVALENTIST study. BMC Public Health, 13, 191. · URL
- Hoque, D. M. E., Ruseckaite, R., Braithwaite, J., & Ting, H. P. (2017). Quality of life measurement in patients with Parkinson's disease: a systematic review of generic and disease-specific instruments and their clinimetric properties. Quality of Life Research, 26(8), 2117–2130. · URL
- Ikehara, S., Iso, H., Yamagishi, K., Yamagishi, K., Maruyama, K., & Inoue, M. (2016). Healthy lifestyle and life expectancy among Japanese adults: findings from the JPHC study. Journal of Epidemiology, 26(2), 88–97. · URL
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