方法证据记录
PedsQL Sickle Cell Module
The PedsQL Sickle Cell Disease Module is a disease-specific instrument developed by Varni et al. in 2012 to measure quality of life in children and adolescents with sickle cell disease aged 2–18 years. Measuring across domains including pain and symptoms, functional limitations, school impact, and disease-related worry, it captures how sickle cell disease and its complications affect daily life and well-being. Used alongside the PedsQL Generic Core Scales, it provides comprehensive assessment of sickle cell disease-specific and general health-related quality of life.
源记录
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Pediatric Quality of Life Inventory—Sickle Cell Disease Module
分类方法记录 · process-pipeline / pediatric-medicine
- Varni, J. W., Limbers, C. A., Bryant, W. P., & Wilson, D. P. (2012). The PedsQL in pediatric sickle cell disease: Measurement model, factor structure, and reliability and validity of the pediatric quality of life inventory sickle cell disease module. Journal of Health Psychology, 17(7), 1012-1024. · URL
- Klingel, M., Kamps, R., Douwes Dekker, H. M., Grobbee, D. E., Hartman, A., & Moll, A. C. (2012). Sickle cell disease and quality of life. International Journal of Environmental Research and Public Health, 15(8), 1638. · URL
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