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Báo cáo đánh giá chức năng viêm khớp thiếu niên (JAFAR)×Module Tiểu đường PedsQL×Chất lượng Cuộc sống trong Bệnh động kinh Thời thơ ấu (QOLCE)×
Lĩnh vựcNhi khoaNhi khoaNhi khoa
HọProcess / pipelineProcess / pipelineProcess / pipeline
Năm ra đời198920032000
Người khởi xướngDavid J. LovellJames W. VarniMark Sabaz
LoạiParent report of child functional statusChild self-report and parent proxyParent report; child self-report version available
Công trình gốcLovell, D. J., Howe, S., Shear, E., Hartner, S., McGirr, G., Schulte, M., & Jaffe, R. (1989). Development of a disability measurement tool for juvenile rheumatoid arthritis. Arthritis & Rheumatism, 32(11), 1390-1395. link ↗Varni, J. W., Burwinkle, T. M., Jacobs, J. R., Gottschalk, M., Kaufman, F., & Jones, K. L. (2003). The PedsQL in type 1 and type 2 diabetes: Reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales and type 1 Diabetes Module. Diabetes Care, 26(3), 631-637. DOI ↗Sabaz, M., Cairns, D. R., Lah, S., Williams, B., Gurrin, L., Connelly, A., & Berkovic, S. F. (2000). Validation of the Quality of Life in Childhood Epilepsy Questionnaire in Australian children with newly diagnosed and chronic epilepsy. Neurology, 55(9), 1646-1652. DOI ↗
Tên gọi khácJAFAR, Juvenile Arthritis Functional Assessment ScalePedsQL 3.0 DiabetesQOL in Childhood Epilepsy Questionnaire
Liên quan454
Tóm tắtThe JAFAR is a parent-report instrument developed by Lovell et al. in 1989 to assess functional ability in children and adolescents with juvenile idiopathic arthritis (JIA). Measuring across multiple domains including lower extremity function, upper extremity function, and activities of daily living, the JAFAR quantifies the extent to which arthritis and its treatment affect the child's mobility, self-care, and participation in age-appropriate activities. It remains a standard functional outcome measure in pediatric rheumatology research and clinical practice.The PedsQL Diabetes Module is a 28-item disease-specific instrument developed by Varni et al. in 2003 to measure quality of life in children and adolescents with type 1 and type 2 diabetes. It captures the impact of diabetes management, glucose monitoring, and disease-related worry on daily functioning. The module is paired with the PedsQL Generic Core Scales, enabling both disease-specific and general health-related quality of life assessment.The QOLCE is a comprehensive 76-item disease-specific instrument developed by Sabaz et al. in 2000 to assess quality of life in children with epilepsy aged 4–16 years. Measuring across 16 distinct domains including seizure worry, cognitive concerns, medication effects, school/peer functioning, and family impact, the QOLCE provides a nuanced profile of how epilepsy and its treatment affect daily life. It exists in parent-report (QOLCE-P) and child self-report (QOLCE-C) versions.
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ScholarGateSo sánh phương pháp: JAFAR · PedsQL Diabetes Module · QOLCE. Truy cập ngày 2026-06-20 từ https://scholargate.app/vi/compare