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	Stroke-Specific Quality of Life Scale (SS-QoL)	ALS Functional Rating Scale Revised (ALSFRS-R)
Ämnesområde	Neurologi	Neurologi
Familj	Process / pipeline	Process / pipeline
Ursprungsår	1999	1999
Upphovsperson	Lee S. Williams, Indiana University	James M. Cedarbaum, NIH/NINDS
Typ	Self-report questionnaire	Clinician-rated and patient-reported hybrid
Ursprungskälla	Williams, L. S., Weinberger, M., Harris, L. E., Clark, D. O., & Biller, J. (1999). Development of a Stroke-Specific Quality of Life Scale. Stroke, 30(7), 1362-1369.	Cedarbaum, J. M., Stambler, N., Malta, E., Fuller, C., Hilt, D., Thurmond, B., & Nakanishi, A. (1999). The ALSFRS-R: A revised ALS functional rating scale that incorporates assessments of respiratory function. Journal of the Neurological Sciences, 169(1-2), 13-21.
Alias	Stroke-Specific QoL, SS-QOL	ALS FRS-R, Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised
Närliggande	4	4
Sammanfattning	The SS-QoL is a disease-specific quality-of-life instrument designed to capture the multidimensional impact of stroke on survivors' functional and emotional well-being. Developed by Williams and colleagues in 1999, this 49-item scale addresses stroke-specific concerns including language, cognition, mobility, and emotional functioning. It is a gold-standard instrument for stroke outcome research and routine clinical monitoring of post-stroke recovery.	The ALSFRS-R is a 12-item clinician-administered functional rating scale designed to assess disease progression and functional status in amyotrophic lateral sclerosis (ALS). Introduced by Cedarbaum and colleagues in 1999, it expands upon the original ALSFRS by incorporating respiratory function assessment. It is the primary outcome measure in ALS clinical trials and routine clinical monitoring, providing quantitative tracking of disease decline that predicts survival and guides management decisions.