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	PedsQL Sickle Cell Disease Module	Pediatric Asthma Quality of Life Questionnaire (PAQLQ)
Ämnesområde	Pediatrik	Pediatrik
Familj	Process / pipeline	Process / pipeline
Ursprungsår	2012	1996
Upphovsperson	James W. Varni	E. F. Juniper
Typ	Child self-report and parent proxy	Child self-report; parent version available
Ursprungskälla	Varni, J. W., Limbers, C. A., Bryant, W. P., & Wilson, D. P. (2012). The PedsQL in pediatric sickle cell disease: Measurement model, factor structure, and reliability and validity of the pediatric quality of life inventory sickle cell disease module. Journal of Health Psychology, 17(7), 1012-1024.	Juniper, E. F., Guyatt, G. H., Feeny, D. H., Ferrie, P. J., Griffith, L. E., & Townsend, M. (1996). Measuring quality of life in children with asthma. Quality of Life Research, 5(1), 35-46.
Alias	PedsQL 3.0 Sickle Cell	PAQLQ-S
Närliggande	4	4
Sammanfattning	The PedsQL Sickle Cell Disease Module is a disease-specific instrument developed by Varni et al. in 2012 to measure quality of life in children and adolescents with sickle cell disease aged 2–18 years. Measuring across domains including pain and symptoms, functional limitations, school impact, and disease-related worry, it captures how sickle cell disease and its complications affect daily life and well-being. Used alongside the PedsQL Generic Core Scales, it provides comprehensive assessment of sickle cell disease-specific and general health-related quality of life.	The PAQLQ is a 23-item self-report instrument developed by Juniper et al. in 1996 to measure quality of life in children aged 7–17 years with asthma. It assesses how asthma and its treatment affect daily functioning, emotions, and activity levels. The instrument has become the gold standard for evaluating asthma-specific health-related quality of life in pediatric populations.