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	PedsQL Cancer Module	Quality of Life in Childhood Epilepsy (QOLCE)
Ämnesområde	Pediatrik	Pediatrik
Familj	Process / pipeline	Process / pipeline
Ursprungsår	2002	2000
Upphovsperson	James W. Varni	Mark Sabaz
Typ	Child self-report and parent proxy	Parent report; child self-report version available
Ursprungskälla	Varni, J. W., Burwinkle, T. M., Katz, E. R., Meeske, K., & Dickinson, R. P. (2002). The PedsQL in pediatric cancer: Reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales, multidimensional fatigue scale, and cancer module. Cancer, 94(7), 2090-2106.	Sabaz, M., Cairns, D. R., Lah, S., Williams, B., Gurrin, L., Connelly, A., & Berkovic, S. F. (2000). Validation of the Quality of Life in Childhood Epilepsy Questionnaire in Australian children with newly diagnosed and chronic epilepsy. Neurology, 55(9), 1646-1652.
Alias	PedsQL 3.0 Cancer	QOL in Childhood Epilepsy Questionnaire
Närliggande	5	4
Sammanfattning	The PedsQL Cancer Module is a 31-item disease-specific instrument developed by Varni et al. in 2002 to measure quality of life in children and adolescents with cancer aged 2–18 years. It captures treatment burden (nausea, vomiting, pain, hair loss), cancer-related worry, cognitive concerns, and emotional and social impacts of diagnosis and treatment. Used alongside the PedsQL Generic Core Scales, it provides comprehensive assessment of both cancer-specific and general health-related quality of life during active treatment, survivorship, and end-of-life care.	The QOLCE is a comprehensive 76-item disease-specific instrument developed by Sabaz et al. in 2000 to assess quality of life in children with epilepsy aged 4–16 years. Measuring across 16 distinct domains including seizure worry, cognitive concerns, medication effects, school/peer functioning, and family impact, the QOLCE provides a nuanced profile of how epilepsy and its treatment affect daily life. It exists in parent-report (QOLCE-P) and child self-report (QOLCE-C) versions.