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| Huntingtonin taudin terveyteen liittyvän elämänlaatuasteikko (HD-QoL)× | Aivohalvauksen spesifinen elämänlaatu-asteikko (SS-QoL)× | |
|---|---|---|
| Tieteenala | Neurologia | Neurologia |
| Menetelmäperhe | Process / pipeline | Process / pipeline |
| Syntyvuosi≠ | 2001 | 1999 |
| Kehittäjä≠ | Helder et al., University of Leiden | Lee S. Williams, Indiana University |
| Tyyppi | Self-report questionnaire | Self-report questionnaire |
| Alkuperäislähde≠ | Helder, D. I., Kaptein, A. A., van Kempen, G. M., Weinman, J., van Houwelingen, H. C., & Roos, R. A. (2001). Living with Huntington's disease: Illness perceptions, coping mechanisms, and patients' well-being. Journal of Psychosomatic Research, 50(1), 1-7. DOI ↗ | Williams, L. S., Weinberger, M., Harris, L. E., Clark, D. O., & Biller, J. (1999). Development of a Stroke-Specific Quality of Life Scale. Stroke, 30(7), 1362-1369. DOI ↗ |
| Rinnakkaisnimet | Huntington Disease QoL, HD-QoL Scale | Stroke-Specific QoL, SS-QOL |
| Liittyvät | 4 | 4 |
| Tiivistelmä≠ | The HD-QoL is a disease-specific quality-of-life instrument designed to measure the multidimensional impact of Huntington's disease on patients' physical, emotional, social, and cognitive functioning. Developed by Helder and colleagues in 2001, it uniquely addresses the progressive motor, cognitive, and psychiatric manifestations characteristic of HD. The scale recognizes that HD burden extends beyond neurological deficits to profound impacts on identity, family relationships, and existential well-being. | The SS-QoL is a disease-specific quality-of-life instrument designed to capture the multidimensional impact of stroke on survivors' functional and emotional well-being. Developed by Williams and colleagues in 1999, this 49-item scale addresses stroke-specific concerns including language, cognition, mobility, and emotional functioning. It is a gold-standard instrument for stroke outcome research and routine clinical monitoring of post-stroke recovery. |
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