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| Huntingtonin taudin terveyteen liittyvän elämänlaatuasteikko (HD-QoL)× | Quality of Life in Epilepsy-89 (QOLIE-89)× | |
|---|---|---|
| Tieteenala | Neurologia | Neurologia |
| Menetelmäperhe | Process / pipeline | Process / pipeline |
| Syntyvuosi≠ | 2001 | 1995 |
| Kehittäjä≠ | Helder et al., University of Leiden | Orrin Devinsky, NYU |
| Tyyppi | Self-report questionnaire | Self-report questionnaire |
| Alkuperäislähde≠ | Helder, D. I., Kaptein, A. A., van Kempen, G. M., Weinman, J., van Houwelingen, H. C., & Roos, R. A. (2001). Living with Huntington's disease: Illness perceptions, coping mechanisms, and patients' well-being. Journal of Psychosomatic Research, 50(1), 1-7. DOI ↗ | Devinsky, O., Vickrey, B. G., Cramer, J., Edwards, B., Perrine, K., Hamberger, M. J., & Towle, V. L. (1995). Development of the Quality of Life in Epilepsy Inventory. Epilepsia, 36(11), 1089-1104. DOI ↗ |
| Rinnakkaisnimet≠ | Huntington Disease QoL, HD-QoL Scale | QoLIE-89 |
| Liittyvät≠ | 4 | 3 |
| Tiivistelmä≠ | The HD-QoL is a disease-specific quality-of-life instrument designed to measure the multidimensional impact of Huntington's disease on patients' physical, emotional, social, and cognitive functioning. Developed by Helder and colleagues in 2001, it uniquely addresses the progressive motor, cognitive, and psychiatric manifestations characteristic of HD. The scale recognizes that HD burden extends beyond neurological deficits to profound impacts on identity, family relationships, and existential well-being. | The QOLIE-89 is a comprehensive disease-specific quality-of-life instrument developed specifically for people with epilepsy. Introduced by Devinsky and colleagues in 1995, it captures the broad impact of epilepsy on physical, emotional, social, and cognitive functioning. With 89 items organized into 17 distinct domains, it remains one of the most detailed QoL assessments for epilepsy and is widely used in clinical trials, health services research, and outcome monitoring. |
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