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Family Quality of Life Scale×Participation and Environment Measure×
FieldDisability StudiesDisability Studies
FamilyLatent structureLatent structure
Year of origin20062011
OriginatorLesa Hoffman, Janet Marquis, Denise Poston, Jean Ann Summers & Ann Turnbull (Beach Center on Disability)Wendy Coster, Mary Law, Gary Bedell, Mary Khetani et al.
TypeFamily-level quality-of-life measurement scaleParent-report participation-and-environment measurement instrument
Seminal sourceHoffman, L., Marquis, J., Poston, D., Summers, J. A., & Turnbull, A. (2006). Assessing Family Outcomes: Psychometric Evaluation of the Beach Center Family Quality of Life Scale. Journal of Marriage and Family, 68(4), 1069-1083. DOI ↗Coster, W., Bedell, G., Law, M., Khetani, M. A., Teplicky, R., Liljenquist, K., Gleason, K., & Kao, Y.-C. (2011). Psychometric evaluation of the Participation and Environment Measure for Children and Youth. Developmental Medicine & Child Neurology, 53(11), 1030-1037. DOI ↗
AliasesBeach Center Family Quality of Life Scale, FQOL Scale, Family Quality of Life Survey, Beach Center FQOLPEM-CY, Participation and Environment Measure for Children and Youth, Children's Participation and Environment Measure, PEM Child Participation Measure
Related33
SummaryThe Beach Center Family Quality of Life Scale (FQOL) measures quality of life at the level of the family unit rather than the individual, designed especially for families that include a member with a disability. Developed at the University of Kansas Beach Center on Disability by Lesa Hoffman, Janet Marquis, Denise Poston, Jean Ann Summers and Ann Turnbull, and psychometrically evaluated in 2006, the scale asks family members to rate their satisfaction across five domains: family interaction, parenting, emotional well-being, physical and material well-being, and disability-related support. Its central move is treating the family, not the person, as the unit whose quality of life is assessed, reflecting a disability-studies and family-systems view that support and outcomes are collective.The Participation and Environment Measure for Children and Youth (PEM-CY) is a caregiver-report instrument that measures how children aged 5 to 17, with and without disabilities, participate in the home, school, and community, and the environmental supports and barriers that shape that participation. Developed by Wendy Coster, Mary Law, Gary Bedell, Mary Khetani and colleagues and published in 2011-2012, the PEM-CY operationalizes the participation construct of the World Health Organization's International Classification of Functioning, Disability and Health (ICF) by asking, for each setting, how often a child takes part, how involved they are, and whether the family desires change, alongside ratings of which environmental features help or hinder. Its distinctive contribution is to measure participation and environment together rather than treating the environment as a separate afterthought.
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ScholarGateCompare methods: Family Quality of Life Scale · Participation and Environment Measure. Retrieved 2026-06-24 from https://scholargate.app/en/compare