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| Lebensqualität bei kindlicher Epilepsie (QOLCE)× | PedsQL Krebsmodul× | |
|---|---|---|
| Fachgebiet | Pädiatrie | Pädiatrie |
| Familie | Process / pipeline | Process / pipeline |
| Entstehungsjahr≠ | 2000 | 2002 |
| Urheber≠ | Mark Sabaz | James W. Varni |
| Typ≠ | Parent report; child self-report version available | Child self-report and parent proxy |
| Wegweisende Quelle≠ | Sabaz, M., Cairns, D. R., Lah, S., Williams, B., Gurrin, L., Connelly, A., & Berkovic, S. F. (2000). Validation of the Quality of Life in Childhood Epilepsy Questionnaire in Australian children with newly diagnosed and chronic epilepsy. Neurology, 55(9), 1646-1652. DOI ↗ | Varni, J. W., Burwinkle, T. M., Katz, E. R., Meeske, K., & Dickinson, R. P. (2002). The PedsQL in pediatric cancer: Reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales, multidimensional fatigue scale, and cancer module. Cancer, 94(7), 2090-2106. DOI ↗ |
| Aliasnamen | QOL in Childhood Epilepsy Questionnaire | PedsQL 3.0 Cancer |
| Verwandt≠ | 4 | 5 |
| Zusammenfassung≠ | The QOLCE is a comprehensive 76-item disease-specific instrument developed by Sabaz et al. in 2000 to assess quality of life in children with epilepsy aged 4–16 years. Measuring across 16 distinct domains including seizure worry, cognitive concerns, medication effects, school/peer functioning, and family impact, the QOLCE provides a nuanced profile of how epilepsy and its treatment affect daily life. It exists in parent-report (QOLCE-P) and child self-report (QOLCE-C) versions. | The PedsQL Cancer Module is a 31-item disease-specific instrument developed by Varni et al. in 2002 to measure quality of life in children and adolescents with cancer aged 2–18 years. It captures treatment burden (nausea, vomiting, pain, hair loss), cancer-related worry, cognitive concerns, and emotional and social impacts of diagnosis and treatment. Used alongside the PedsQL Generic Core Scales, it provides comprehensive assessment of both cancer-specific and general health-related quality of life during active treatment, survivorship, and end-of-life care. |
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