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Bericht zur Beurteilung der Funktion bei juveniler Arthritis (JAFAR)×Child Health Questionnaire (CHQ)×Fragebogen zur Lebensqualität bei pädiatrischem Asthma (PAQLQ)×PedsQL Diabetes-Modul×Lebensqualität bei kindlicher Epilepsie (QOLCE)×
FachgebietPädiatriePädiatriePädiatriePädiatriePädiatrie
FamilieProcess / pipelineProcess / pipelineProcess / pipelineProcess / pipelineProcess / pipeline
Entstehungsjahr19891996199620032000
UrheberDavid J. LovellJohn M. LandgrafE. F. JuniperJames W. VarniMark Sabaz
TypParent report of child functional statusParent report (primary) and child self-report versions availableChild self-report; parent version availableChild self-report and parent proxyParent report; child self-report version available
Wegweisende QuelleLovell, D. J., Howe, S., Shear, E., Hartner, S., McGirr, G., Schulte, M., & Jaffe, R. (1989). Development of a disability measurement tool for juvenile rheumatoid arthritis. Arthritis & Rheumatism, 32(11), 1390-1395. link ↗Landgraf, J. M., Abetz, L., & Ware, J. E. (1996). The CHQ User's Manual. HealthAct. ISBN: 978-0965475303Juniper, E. F., Guyatt, G. H., Feeny, D. H., Ferrie, P. J., Griffith, L. E., & Townsend, M. (1996). Measuring quality of life in children with asthma. Quality of Life Research, 5(1), 35-46. DOI ↗Varni, J. W., Burwinkle, T. M., Jacobs, J. R., Gottschalk, M., Kaufman, F., & Jones, K. L. (2003). The PedsQL in type 1 and type 2 diabetes: Reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales and type 1 Diabetes Module. Diabetes Care, 26(3), 631-637. DOI ↗Sabaz, M., Cairns, D. R., Lah, S., Williams, B., Gurrin, L., Connelly, A., & Berkovic, S. F. (2000). Validation of the Quality of Life in Childhood Epilepsy Questionnaire in Australian children with newly diagnosed and chronic epilepsy. Neurology, 55(9), 1646-1652. DOI ↗
AliasnamenJAFAR, Juvenile Arthritis Functional Assessment ScaleCHQ-50, CHQ-28, CHQ-PF28, CHQ-CF87PAQLQ-SPedsQL 3.0 DiabetesQOL in Childhood Epilepsy Questionnaire
Verwandt44454
ZusammenfassungThe JAFAR is a parent-report instrument developed by Lovell et al. in 1989 to assess functional ability in children and adolescents with juvenile idiopathic arthritis (JIA). Measuring across multiple domains including lower extremity function, upper extremity function, and activities of daily living, the JAFAR quantifies the extent to which arthritis and its treatment affect the child's mobility, self-care, and participation in age-appropriate activities. It remains a standard functional outcome measure in pediatric rheumatology research and clinical practice.The Child Health Questionnaire is a generic, parent-reported instrument developed by Landgraf et al. in 1996 to measure health-related quality of life in children aged 5–18 years. Unlike disease-specific measures, the CHQ captures broad domains of physical, emotional, social, and school functioning, making it suitable for diverse pediatric populations with or without chronic conditions. The CHQ-50 is the most widely used parent-report form; shorter (CHQ-28) and comprehensive (CHQ-CF87 child + family) versions are also available.The PAQLQ is a 23-item self-report instrument developed by Juniper et al. in 1996 to measure quality of life in children aged 7–17 years with asthma. It assesses how asthma and its treatment affect daily functioning, emotions, and activity levels. The instrument has become the gold standard for evaluating asthma-specific health-related quality of life in pediatric populations.The PedsQL Diabetes Module is a 28-item disease-specific instrument developed by Varni et al. in 2003 to measure quality of life in children and adolescents with type 1 and type 2 diabetes. It captures the impact of diabetes management, glucose monitoring, and disease-related worry on daily functioning. The module is paired with the PedsQL Generic Core Scales, enabling both disease-specific and general health-related quality of life assessment.The QOLCE is a comprehensive 76-item disease-specific instrument developed by Sabaz et al. in 2000 to assess quality of life in children with epilepsy aged 4–16 years. Measuring across 16 distinct domains including seizure worry, cognitive concerns, medication effects, school/peer functioning, and family impact, the QOLCE provides a nuanced profile of how epilepsy and its treatment affect daily life. It exists in parent-report (QOLCE-P) and child self-report (QOLCE-C) versions.
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ScholarGateMethoden vergleichen: JAFAR · CHQ · PAQLQ · PedsQL Diabetes Module · QOLCE. Abgerufen am 2026-06-20 von https://scholargate.app/de/compare