Methoden vergleichen

	Huntington's Disease Health-Related Quality of Life Scale (HD-QoL)	Stroke-Specific Quality of Life Scale (SS-QoL)
Fachgebiet	Neurologie	Neurologie
Familie	Process / pipeline	Process / pipeline
Entstehungsjahr	2001	1999
Urheber	Helder et al., University of Leiden	Lee S. Williams, Indiana University
Typ	Self-report questionnaire	Self-report questionnaire
Wegweisende Quelle	Helder, D. I., Kaptein, A. A., van Kempen, G. M., Weinman, J., van Houwelingen, H. C., & Roos, R. A. (2001). Living with Huntington's disease: Illness perceptions, coping mechanisms, and patients' well-being. Journal of Psychosomatic Research, 50(1), 1-7.	Williams, L. S., Weinberger, M., Harris, L. E., Clark, D. O., & Biller, J. (1999). Development of a Stroke-Specific Quality of Life Scale. Stroke, 30(7), 1362-1369.
Aliasnamen	Huntington Disease QoL, HD-QoL Scale	Stroke-Specific QoL, SS-QOL
Verwandt	4	4
Zusammenfassung	The HD-QoL is a disease-specific quality-of-life instrument designed to measure the multidimensional impact of Huntington's disease on patients' physical, emotional, social, and cognitive functioning. Developed by Helder and colleagues in 2001, it uniquely addresses the progressive motor, cognitive, and psychiatric manifestations characteristic of HD. The scale recognizes that HD burden extends beyond neurological deficits to profound impacts on identity, family relationships, and existential well-being.	The SS-QoL is a disease-specific quality-of-life instrument designed to capture the multidimensional impact of stroke on survivors' functional and emotional well-being. Developed by Williams and colleagues in 1999, this 49-item scale addresses stroke-specific concerns including language, cognition, mobility, and emotional functioning. It is a gold-standard instrument for stroke outcome research and routine clinical monitoring of post-stroke recovery.