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| AcroQoL: Akromegalie-Lebensqualitätsfragebogen× | CushQoL: Cushing-Syndrom Lebensqualitätsfragebogen× | |
|---|---|---|
| Fachgebiet | Endokrinologie | Endokrinologie |
| Familie | Process / pipeline | Process / pipeline |
| Entstehungsjahr≠ | 2006 | 2008 |
| Urheber≠ | Markus Buchfelder, Dieter Weigel, Monica Droste, et al. | Sergio Webb, María D. Bernal, Juan M. Rivera-Caravaca |
| Typ | Patient self-report questionnaire | Patient self-report questionnaire |
| Wegweisende Quelle≠ | Buchfelder, M., Weigel, D., Droste, M., et al. (2006). The quality of life of acromegaly patients is markedly impaired: Data from the German Acromegaly Registry. Eur J Endocrinol, 150(4), 541-549. link ↗ | Webb, S. M., Bernal, M. D., Rivera-Caravaca, J. M., & Córdoba-Soriano, J. G. (2008). Development and validation of CushQoL, a disease-specific quality of life questionnaire in Cushing's syndrome. J Clin Endocrinol Metab, 93(5), 1751-1759. link ↗ |
| Aliasnamen | Acromegaly QoL, Acro-QoL | Cushing QoL, CS-QoL |
| Verwandt | 3 | 3 |
| Zusammenfassung≠ | AcroQoL is a disease-specific 22-item quality of life questionnaire developed to assess the multidimensional burden of acromegaly, a chronic growth hormone-secreting pituitary tumor disorder. Developed by Buchfelder and colleagues in 2006, it captures physical complications (joint/bone pain, carpal tunnel syndrome, metabolic disease), appearance-related concerns (facial changes, hand/foot enlargement), and psychological/social impacts (mood, social limitation, body image). It is the primary outcome measure for assessing quality of life in acromegaly treatment trials and clinical practice. | CushQoL is a disease-specific 12-item quality of life questionnaire developed to assess the multidimensional impacts of Cushing's syndrome—a severe endocrine disorder characterized by excess cortisol production. Developed by Webb and colleagues in 2008, it captures physical symptoms (fatigue, weight gain, weakness, hirsutism), psychological manifestations (depression, anxiety, cognitive impairment), and social/occupational dysfunction unique to Cushing's syndrome. It is the standard outcome measure for assessing quality of life improvement following curative therapy. |
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