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| Livskvalitet ved barndomsepilepsi (QOLCE)× | PedsQL Diabetes Module× | |
|---|---|---|
| Fagområde | Pædiatri | Pædiatri |
| Familie | Process / pipeline | Process / pipeline |
| Oprindelsesår≠ | 2000 | 2003 |
| Ophavsperson≠ | Mark Sabaz | James W. Varni |
| Type≠ | Parent report; child self-report version available | Child self-report and parent proxy |
| Oprindelig kilde≠ | Sabaz, M., Cairns, D. R., Lah, S., Williams, B., Gurrin, L., Connelly, A., & Berkovic, S. F. (2000). Validation of the Quality of Life in Childhood Epilepsy Questionnaire in Australian children with newly diagnosed and chronic epilepsy. Neurology, 55(9), 1646-1652. DOI ↗ | Varni, J. W., Burwinkle, T. M., Jacobs, J. R., Gottschalk, M., Kaufman, F., & Jones, K. L. (2003). The PedsQL in type 1 and type 2 diabetes: Reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales and type 1 Diabetes Module. Diabetes Care, 26(3), 631-637. DOI ↗ |
| Aliasser | QOL in Childhood Epilepsy Questionnaire | PedsQL 3.0 Diabetes |
| Relaterede≠ | 4 | 5 |
| Resumé≠ | The QOLCE is a comprehensive 76-item disease-specific instrument developed by Sabaz et al. in 2000 to assess quality of life in children with epilepsy aged 4–16 years. Measuring across 16 distinct domains including seizure worry, cognitive concerns, medication effects, school/peer functioning, and family impact, the QOLCE provides a nuanced profile of how epilepsy and its treatment affect daily life. It exists in parent-report (QOLCE-P) and child self-report (QOLCE-C) versions. | The PedsQL Diabetes Module is a 28-item disease-specific instrument developed by Varni et al. in 2003 to measure quality of life in children and adolescents with type 1 and type 2 diabetes. It captures the impact of diabetes management, glucose monitoring, and disease-related worry on daily functioning. The module is paired with the PedsQL Generic Core Scales, enabling both disease-specific and general health-related quality of life assessment. |
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