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| Infant and Toddler Quality of Life Questionnaire (ITQOL)× | Livskvalitet ved barndomsepilepsi (QOLCE)× | |
|---|---|---|
| Fagområde | Pædiatri | Pædiatri |
| Familie | Process / pipeline | Process / pipeline |
| Oprindelsesår≠ | 1997 | 2000 |
| Ophavsperson≠ | John M. Landgraf | Mark Sabaz |
| Type≠ | Parent report of infant/toddler health and functioning | Parent report; child self-report version available |
| Oprindelig kilde≠ | Landgraf, J. M., Abetz, L., & Ware, J. E. (2002). The infant and toddler quality of life questionnaire: User's manual and interpretation guide. Health Act. ISBN: 978-1881667360 | Sabaz, M., Cairns, D. R., Lah, S., Williams, B., Gurrin, L., Connelly, A., & Berkovic, S. F. (2000). Validation of the Quality of Life in Childhood Epilepsy Questionnaire in Australian children with newly diagnosed and chronic epilepsy. Neurology, 55(9), 1646-1652. DOI ↗ |
| Aliasser≠ | ITQOL, Infant-Toddler QoL | QOL in Childhood Epilepsy Questionnaire |
| Relaterede | 4 | 4 |
| Resumé≠ | The ITQOL is a generic parent-report instrument developed by Landgraf et al. in 1997 to measure health-related quality of life in infants and toddlers aged 2 months to 5 years. Addressing the developmental uniqueness of the very young, the ITQOL captures health-related functioning across domains relevant to early childhood: physical growth and development, respiratory functioning, sleep patterns, emotional security, parental time and emotional burden, and family social functioning. A 97-item full form and 47-item abbreviated form are available, enabling comprehensive or brief assessment depending on clinical context. | The QOLCE is a comprehensive 76-item disease-specific instrument developed by Sabaz et al. in 2000 to assess quality of life in children with epilepsy aged 4–16 years. Measuring across 16 distinct domains including seizure worry, cognitive concerns, medication effects, school/peer functioning, and family impact, the QOLCE provides a nuanced profile of how epilepsy and its treatment affect daily life. It exists in parent-report (QOLCE-P) and child self-report (QOLCE-C) versions. |
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