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| Доклад за оценка на функционалната способност при ювенилен артрит (JAFAR)× | Качество на живот при детска епилепсия (QOLCE)× | |
|---|---|---|
| Област | Педиатрия | Педиатрия |
| Семейство | Process / pipeline | Process / pipeline |
| Година на възникване≠ | 1989 | 2000 |
| Създател≠ | David J. Lovell | Mark Sabaz |
| Тип≠ | Parent report of child functional status | Parent report; child self-report version available |
| Основополагащ източник≠ | Lovell, D. J., Howe, S., Shear, E., Hartner, S., McGirr, G., Schulte, M., & Jaffe, R. (1989). Development of a disability measurement tool for juvenile rheumatoid arthritis. Arthritis & Rheumatism, 32(11), 1390-1395. link ↗ | Sabaz, M., Cairns, D. R., Lah, S., Williams, B., Gurrin, L., Connelly, A., & Berkovic, S. F. (2000). Validation of the Quality of Life in Childhood Epilepsy Questionnaire in Australian children with newly diagnosed and chronic epilepsy. Neurology, 55(9), 1646-1652. DOI ↗ |
| Други названия≠ | JAFAR, Juvenile Arthritis Functional Assessment Scale | QOL in Childhood Epilepsy Questionnaire |
| Свързани | 4 | 4 |
| Резюме≠ | The JAFAR is a parent-report instrument developed by Lovell et al. in 1989 to assess functional ability in children and adolescents with juvenile idiopathic arthritis (JIA). Measuring across multiple domains including lower extremity function, upper extremity function, and activities of daily living, the JAFAR quantifies the extent to which arthritis and its treatment affect the child's mobility, self-care, and participation in age-appropriate activities. It remains a standard functional outcome measure in pediatric rheumatology research and clinical practice. | The QOLCE is a comprehensive 76-item disease-specific instrument developed by Sabaz et al. in 2000 to assess quality of life in children with epilepsy aged 4–16 years. Measuring across 16 distinct domains including seizure worry, cognitive concerns, medication effects, school/peer functioning, and family impact, the QOLCE provides a nuanced profile of how epilepsy and its treatment affect daily life. It exists in parent-report (QOLCE-P) and child self-report (QOLCE-C) versions. |
| ScholarGateНабор от данни ↗ |
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