PDQ-39
The PDQ-39 is the most widely used patient-reported outcome measure for Parkinson's disease quality of life. Developed by Crispin Jenkinson and colleagues in 1997, this 39-item self-report questionnaire comprehensively assesses how Parkinson's symptoms affect daily functioning, emotional well-being, stigma, social support, and cognitive-communication abilities. It is the recommended instrument in major Parkinson's disease clinical trials and forms a core component of outcome measurement in movement disorders.
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- Jenkinson, C., Fitzpatrick, R., Peto, V., Greenhall, R., & Hyman, N. (1997). The Parkinson's Disease Questionnaire (PDQ-39): Development and validation of a Parkinson's disease summary index score. Age and Ageing, 26(5), 353-357. · DOI 10.1093/ageing/26.5.353
- Peto, V., Jenkinson, C., Fitzpatrick, R., & Greenhall, R. (1995). The development and validation of a short measure of functioning and well-being for individuals with Parkinson's disease. Quality of Life Research, 4(3), 241-248. · DOI 10.1007/BF02260863
- Martínez-Martín, P., Rodríguez-Blázquez, C., Alvarez, M., Arakaki, T., Bergareche, A., Chade, A., ... & Grupo Centros Colaboradores de la Sociedad Española de Neurología para la validación de escalas en neurología. (2009). Expanded and independent validation of the Movement Disorder Society-sponsored unified Parkinson's disease rating scale (MDS-UPDRS). Journal of Parkinson's Disease, 3(3), 271-283. · URL
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