Metodebevisregistrering

HD-QoL

The HD-QoL is a disease-specific quality-of-life instrument designed to measure the multidimensional impact of Huntington's disease on patients' physical, emotional, social, and cognitive functioning. Developed by Helder and colleagues in 2001, it uniquely addresses the progressive motor, cognitive, and psychiatric manifestations characteristic of HD. The scale recognizes that HD burden extends beyond neurological deficits to profound impacts on identity, family relationships, and existential well-being.

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Kilderegistrering

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Huntington's Disease Health-Related Quality of Life Scale

Taksonomisk metoderegistrering · process-pipeline / neurology

Helder, D. I., Kaptein, A. A., van Kempen, G. M., Weinman, J., van Houwelingen, H. C., & Roos, R. A. (2001). Living with Huntington's disease: Illness perceptions, coping mechanisms, and patients' well-being. Journal of Psychosomatic Research, 50(1), 1-7. · DOI 10.1348/135910702320645417

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Relaterede metoder

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Taxonomic bucketMSQOL-54machine-suggested · Relational suggestion, not evidence.Same method familyNMSSmachine-suggested · Relational suggestion, not evidence.Taxonomic bucketQOLIE-89machine-suggested · Relational suggestion, not evidence.Taxonomic bucketSS-QoLmachine-suggested · Relational suggestion, not evidence.